Important Information Links

Our host organization, the Long Term Care Community Coalition (LTCCC), has three websites with helpful information on nursing home and assisted living care. All materials are available to download for free.  LTCCC’s homepage. It has all of LTCCC’s publications and resources, including newsletters and consumer guides, the LTC Citizen Action Center and information on quality indicators, staffing and penalties for every nursing home in New York.
Nursing Home 411org LTCCC’s dedicated nursing home website.  It has sections dedicated to: information for consumers, antipsychotic drugging & dementia care, NY State nursing home issues and more.

Assisted-Living LTCCC’s dedicated assisted living website. It has free guides and a workshop for seniors, families and staff to better quality of life and autonomy in assisted living as well as information on New York’s assisted living laws and standards.

Following are additional links to resources that can be useful to consumers, families and LTC Ombudsmen. Section 1 provides links that are New York specific.  Section 2  provides links that are useful for all.

Section 1: New York Resources 

New York State Ombudsman Website is the website for the state program that oversees the county level ombudsman programs. You can find additional information about the program.

 New York Department of Health The Department of Health (DOH) has principal responsibility for regulating healthcare in New York, including oversight of the state’s nursing homes and licensed assisted living/adult home communities.

NY State Nursing Home Regulations

NY Connects can help you find services in your area and can help you learn more about LTC topics.

ICAN is the New York State Ombudsprogram for people with Medicaid long-term care services. They assist New Yorkers with enrolling in and using managed care plans that cover long-term care services, such as home attendant services or nursing home care.

County Offices for the Aging

NY Patient’s Bill of Rights lays out your rights when you are in a hospital.

The New York State Senior Action Council is a grassroots membership organization made up of individual senior citizens and senior citizen clubs from all parts of New York State. State Wide was organized in 1972 from War on Poverty funds with the goal of developing a statewide organization of older New Yorkers who could advocate for their interests and needs regarding services, programs and policies effecting older persons.

New York State Care giving and Respite Coalition (NYSCRC) is a statewide coalition focused on supporting caregivers, professionals and providers across New York State.

Adult Home Resident Council Toolkit can help residents in Adults Home set up a resident council to bring their concerns and issues to the facility.

The NY State Wide Action Council Patient Rights Helpline The helpline (800-333-4374) provides assistance for people who have been: denied emergency treatment, transferred unsafely, denied admission, discharged too soon, not issued an adequate hospital discharge plan, kept in a nursing home even though they wish to return to the community, found conditions to be below acceptable standards or are having difficulty understanding what is covered by their insurance.

Section 2: General Resources 

Nursing Home Compare Websites

Nursing Home Compare  Find information on any licensed nursing home in the United States. Searchable by city, state or Zip Code.  Information includes star ratings, staffing levels, citations and more.
ProPublica Nursing Home Inspect  Find records of nursing home problems in facilities in New York or any state. consumer check list for visiting a facility

The Consumer Voice is a national advocacy website for long term care residents and their families.

The National Ombudsman Resource Center provides support, technical assistance and training to the 53 State Long-Term Care Ombudsman Programs and their statewide networks of almost 600 regional (local) programs.

Coalition for Quality Care The Coalition for Quality Care is an umbrella organization of Long-term Care Citizen Advocacy Groups (CAGs) working together to strengthen our individual groups throughout the nation, share information among them and to speak and take action on both state and national levels with one voice.

The Center for Medicare Advocacy, Inc. is a private, nonprofit organization which provides education, advocacy, and legal assistance to help elders and people with disabilities obtain necessary healthcare.

The Medicare Rights Center is a national nonprofit organization that helps ensure that older adults and people with disabilities get good, affordable health care. Resources include Medicare Interactive, a free and independent online reference tool designed to help older adults and people with disabilities navigate the complex world of health insurance, and Medicare consumer fact sheets.

The National Institute on Aging leads the national scientific effort to understand the nature of aging and to extend the healthy, active years of life. In 1974, Congress granted authority to form NIA to provide leadership in aging research, training, health information dissemination, and other programs relevant to aging and older people. Subsequent amendments to this legislation designated the NIA as the primary Federal agency on Alzheimer’s disease research.

The Alzheimer’s Association has a helpline which can help people with memory loss, caregivers, health care professionals and others. Call toll-free anytime day or night at 1.800.272.3900.

Justice in Aging is a national non-profit legal advocacy organization that fights senior poverty through law